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  #11  
Old 10-24-2018, 09:45 AM
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Quote:
Originally Posted by bigeasy1 View Post
Hey Tony,so glad you were able to get out on that beautiful boat.Pics and video were great and nothing like good friends to make such special times.

Been thinking about you. I wasn't sure if I could email you or if better to leave a message on your cell. I was wondering if you finished up on the clinical trials.In the mean time I hope you Keep Having lots of good times with your friends on that very very sweet boat. You're in my thoughts and prayers.God bless
Either one works, John, thank you!
I'm right in the middle of the study now, and get my first dose of treated stem cells on 11-14. I'm hoping for the best!
Thank you again for all you did for me, and I hope life is treating you well!
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  #12  
Old 02-13-2019, 12:11 PM
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Hey tony
I came across this on the news and wasnt sure if it is the treatment you had with stem cells. There is a navy pilot with ALS being treated with a an experimental drug called murone.He had lost his ability to speak but has since regained the ability to speak with this new procedure.
He can also pull himself up and out from a wheelchair. The company who was responsible for this is called the Goldwater Institute Its under a new program signed into law by the president called "The right to try law".
The pilots name is Matt bellinski his facebook is Facebook/@matt bellinski.7
It seems promising.
Not sure if this was the trials that you were in, but figured you might want to look into it? Thinking of you often, take care and God bless. John R.
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  #13  
Old 02-18-2019, 08:54 AM
Bigshrimpin Bigshrimpin is offline
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BigE - was this the article?

https://www.bloomberg.com/news/artic...s-it-s-working

http://www.brainstorm-cell.com/patie...inical-trials/

For information on enrollment in the NurOwn® phase 3 trial contact one of the clinical trial sites for details and screening.

Locations:
United States, California
University of California Irvine Alpha Stem Cell Clinic Recruiting
Irvine, California, United States, 92697
Contact: Robert Zhou 949-824-3990 stemcell@uci.edu
Principal Investigator: Namita A. Goyal, MD




Tony - Looks like you had 2 treatments from your facebook page. Are you seeing any changes?
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  #14  
Old 02-19-2019, 10:50 AM
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Yes, Thanks Big.
that was the article. I originally saw it on the Stewart Varney show on Fox Business network.I know that I saw it featured on Bloomberg as well.
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Last edited by bigeasy1; 02-19-2019 at 10:57 AM.
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  #15  
Old 02-20-2019, 10:13 AM
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Tony - Looks like you had 2 treatments from your facebook page. Are you seeing any changes?[/QUOTE]

Yes, this is the trial that I'm in, and unfortunately it hasn't shown any positive results for me so far. It's a double blind study, so I may be getting the placebo, but there's no way to know that.

I continue to stay positive and hope for a breakthrough. I would dearly love to use the boat again this summer!

Thanks for thinking of me!
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